Wednesday, December 11, 2013

Cole's NJ adventure

We leave in 4 days.  Cole, my mom (Grandma Trapp) and I will be departing Indiana early Sunday morning for the 12 hour drive to Summit, New Jersey.   The reason?  Cole has two dislocated hips that need to be put back in place.  Because Cole does not weight bare, he never developed deep hip sockets that keep his femur in place.  Therefore, they drift out of socket.  Conventional medicine and our local physicians believe in the femoral osteotomy.  Put the hips back in place, pin them, body cast for 6 weeks and come back in 5 years to do it all over again.  This technique "fixes" the hips in the short term, but does nothing to solve the underlying problem.  Hence the reason we are driving to New Jersey.
Dr. Nuzzo is the guru of innovative CP surgical techniques.  He believes in looking at the neurological disfunction and not just the affected bone structure.  We went to him in April 2009 and Cole had a procedure known as Percs done.  This time he will be doing the Superio-lateral outcropping bone graft or SLOB for short.  Lovely acronym I know.  He is basically constructing new hip sockets for Cole so his femur cannot come out again.  
Surgery is December 17th.  Cole will be inpatient for 3 or 4 days.  Then will come home wearing a hip brace for 4-6 weeks.  No weight baring for 4 weeks.  But hopefully he will be recovered enough to return to school at The Jackson Center for Conductive Education in January.
I will do my best to keep you updated during surgery and afterwards while he recovers.
Please keep Cole, our family and his doctor's in your thought and prayers the next few weeks.

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