We arrived in New Jersey on Sunday. Cole did great on the airplane. No fussing, nothing. Loved taking off and the noises, and he fell asleep 10 minutes into the flight.
Monday we met with my friend Aimee and her son Jeff. Jeff also has CP and Aimee and I met online in a preemie support group. Jeff had the same surgery last June and they just happen to live in New Jersey. It was great to see the boys roll around on the floor together and Aimee could not say enough good things about Percs. and Dr. Nuzzo.
Later in the day we met with Dr. Nuzzo and discussed what to do. He decided to only do Percs. on Cole's hamstrings, forgoing the gastroc and adductors believing his range of motion was good in those areas. So no casts! He also decided to do alcohol blocks on Cole's pectoral and adductor muscles.
Tuesday we arrived at the hospital at 5:30am. Got checked in for 7:30 surgery. I loved Cole's Tiffany box colored gown. It is a good color on him. Don't you think?
We then met with Dr. Nuzzo and got ready to go. They let me walk Cole into the operating room and be with him until he was out. Cole was a champ in surgery. Surgery lasted less than an hour and then I sat with him in the recovery room from 8:30 to 12:00 while Cole napped and tried to wake up. They were great and didn't rush us out until Cole was ready. Every person we encountered on our trip was fantastic. Very friendly, and helpful. Loved our trip to NJ.
We then met with Dr. Nuzzo and got ready to go. They let me walk Cole into the operating room and be with him until he was out. Cole was a champ in surgery. Surgery lasted less than an hour and then I sat with him in the recovery room from 8:30 to 12:00 while Cole napped and tried to wake up. They were great and didn't rush us out until Cole was ready. Every person we encountered on our trip was fantastic. Very friendly, and helpful. Loved our trip to NJ.
So this is the brave patient. He has immobilizers on his knees to keep him from curling up into the fetal position. He wore them for the first 24 hours and then just has to ware them at night until he breaks that sleeping habit. He has a tiny incision on the back of both knees and those are bruised. Both NOTHING else. He does not seem to be in any real pain.
So here is where the miracle comes in. Today we fly home and take off his little braces in the Detroit airport and let him roll around on the floor. Immediately he starts to explore and roll side to side. Grabbing at my jacket and zippers and really trying to roll to his tummy. He gets to his tummy and presses up on his elbows. Smiling the whole time. Talking, talking, talking. His speech is exploding. He went from one syllable words to repeating sentences. I was messing with him and asked him is he wanted me to get out of his face and he repeated "get out of my face". It was awesome.
I can't wait to see what he does tomorrow! If this is all the change we see in Cole, that alone will be worth the time and cost of going to NJ. I am so proud of him.
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